As it is Dying Matters Week, I summarise some of the difficult conversations we have had to prepare for the inevitable.
Mum’s happiness is the most important thing in the world to us now, and a weekend of laughter is the perfect tonic. Making every day count isn’t about making every day big. Every day is a memory, and the small things matter just as much as – if not more than – the big. … Continue reading Soaring High
I’m on my way home! I’m sat on a packed train full of people eagerly leaving London, anticipating whatever they have planned for the weekend. I’m excited to see my mum and my sister. The past three weeks have been quite painful at times, and it’s hard to sit on the side lines while other … Continue reading A Long and Winding Road
The simplest pleasures tend to be what people miss the most. The things we take for granted are the things you notice when you can’t do it anymore. The fear of losing them can be the most daunting part of coming to terms with the diagnosis. In the twenty days since we received the … Continue reading The Simplest Pleasures
It is important to remember that everybody's experiences of MND are different. People react in different ways, all of which are perfectly legitimate. Personally, I find that the nights are the hardest. I've been doing so well lately. This blog was giving me more confidence, and I felt more able to talk about things. Mum … Continue reading Endless Days, Restless Nights
What scares me the most about MND, is loneliness. The idea that you become trapped inside your own head and nobody else will ever hear your voice again. It must be incredibly lonely. Although my mum’s voice will never be the same again, at least I know she will not be silent. Today she got … Continue reading You Cannot Silence Me
My header image is so beautiful. Daffodils are more commonly associated with the fight against cancer, but for me, they're my mum. I vividly remember sitting on tiny blue chairs in primary school; card, glue and tissue paper scattered across the tables; children fighting for materials. We’re making Mothers’ Day cards. And every year, the same … Continue reading Why Daffodils?
You never expect to hear that someone you love is dying. You never expect to hear that there is a 0% chance of someone you love getting better. You never expect that phone call to come, and you can never anticipate how you will react. On Wednesday 19th April 2017, that phone call came. It … Continue reading The World From Under Your Feet