[N.B. This post is about caring for someone with a PEG. For a perspective on living with motor neurone disease and a feeding tube, please click here.] Three weeks ago, Mum finally had her PEG fitted. Right from the start of this journey, we knew she needed the PEG. By the time we received her diagnosis, her … Continue reading Fear is Psychological
How three hours of unrivalled joy were simply the culmination of three months of hope and excitement
Association Visitors provide emotional support and practical guidance. Yet 80% of people with MND don't have one.
For the last day of MND Awareness Month, I want to raise awareness of Emotional Lability.
MND changes your perspective - but achievements can be accomplished and goals can be reached. Like Mum did today.
The unexpected consequences from a conflict between riluzole (MND medication) and antidepressants.
I am supporting the #MyEyesSay campaign for MND Awareness Month
In a week of progress, one event stands out as a symbol of what is to come - Mum's new wheelchair.
It can be easy to think that being diagnosed with MND means a life of despair. But some good can come from it.
As it is Dying Matters Week, I summarise some of the difficult conversations we have had to prepare for the inevitable.