The unexpected consequences from a conflict between riluzole (MND medication) and antidepressants.
I am supporting the #MyEyesSay campaign for MND Awareness Month
In a week of progress, one event stands out as a symbol of what is to come - Mum's new wheelchair.
It can be easy to think that being diagnosed with MND means a life of despair. But some good can come from it.
As it is Dying Matters Week, I summarise some of the difficult conversations we have had to prepare for the inevitable.
The simplest pleasures tend to be what people miss the most. The things we take for granted are the things you notice when you can’t do it anymore. The fear of losing them can be the most daunting part of coming to terms with the diagnosis. In the twenty days since we received the … Continue reading The Simplest Pleasures
What scares me the most about MND, is loneliness. The idea that you become trapped inside your own head and nobody else will ever hear your voice again. It must be incredibly lonely. Although my mum’s voice will never be the same again, at least I know she will not be silent. Today she got … Continue reading You Cannot Silence Me