Today I start my second week in my new job. Six days ago, I had to bite the bullet and tell them about Mum.
I am supporting the #MyEyesSay campaign for MND Awareness Month
Since the diagnosis, my home life has influenced my work, because it has changed me. My first fundraising effort marks how brilliant my employers have been.
It can be easy to think that being diagnosed with MND means a life of despair. But some good can come from it.
One month on from diagnosis, how are things going?
Mum’s happiness is the most important thing in the world to us now, and a weekend of laughter is the perfect tonic. Making every day count isn’t about making every day big. Every day is a memory, and the small things matter just as much as – if not more than – the big. … Continue reading Soaring High
The simplest pleasures tend to be what people miss the most. The things we take for granted are the things you notice when you can’t do it anymore. The fear of losing them can be the most daunting part of coming to terms with the diagnosis. In the twenty days since we received the … Continue reading The Simplest Pleasures
It is important to remember that everybody's experiences of MND are different. People react in different ways, all of which are perfectly legitimate. Personally, I find that the nights are the hardest. I've been doing so well lately. This blog was giving me more confidence, and I felt more able to talk about things. Mum … Continue reading Endless Days, Restless Nights
My header image is so beautiful. Daffodils are more commonly associated with the fight against cancer, but for me, they're my mum. I vividly remember sitting on tiny blue chairs in primary school; card, glue and tissue paper scattered across the tables; children fighting for materials. We’re making Mothers’ Day cards. And every year, the same … Continue reading Why Daffodils?
You never expect to hear that someone you love is dying. You never expect to hear that there is a 0% chance of someone you love getting better. You never expect that phone call to come, and you can never anticipate how you will react. On Wednesday 19th April 2017, that phone call came. It … Continue reading The World From Under Your Feet