A thank you to the specialist teams who help us refocus on the positive side of life.
[N.B. This post is about caring for someone with a PEG. For a perspective on living with motor neurone disease and a feeding tube, please click here.] Three weeks ago, Mum finally had her PEG fitted. Right from the start of this journey, we knew she needed the PEG. By the time we received her diagnosis, her... Continue Reading →
How three hours of unrivalled joy were simply the culmination of three months of hope and excitement
Association Visitors provide emotional support and practical guidance. Yet 80% of people with MND don't have one.
MND changes your perspective - but achievements can be accomplished and goals can be reached. Like Mum did today.
Today I start my second week in my new job. Six days ago, I had to bite the bullet and tell them about Mum.
Yesterday was my sister's 21st birthday. She's had so much to deal with. We wanted to make this birthday special.