A thank you to the specialist teams who help us refocus on the positive side of life.
[N.B. This post is about caring for someone with a PEG. For a perspective on living with motor neurone disease and a feeding tube, please click here.] Three weeks ago, Mum finally had her PEG fitted. Right from the start of this journey, we knew she needed the PEG. By the time we received her diagnosis, her … Continue reading Fear is Psychological
How three hours of unrivalled joy were simply the culmination of three months of hope and excitement
Association Visitors provide emotional support and practical guidance. Yet 80% of people with MND don't have one.
MND changes your perspective - but achievements can be accomplished and goals can be reached. Like Mum did today.
Today I start my second week in my new job. Six days ago, I had to bite the bullet and tell them about Mum.
Yesterday was my sister's 21st birthday. She's had so much to deal with. We wanted to make this birthday special.
One month on from diagnosis, how are things going?
As it is Dying Matters Week, I summarise some of the difficult conversations we have had to prepare for the inevitable.
Mum’s happiness is the most important thing in the world to us now, and a weekend of laughter is the perfect tonic. Making every day count isn’t about making every day big. Every day is a memory, and the small things matter just as much as – if not more than – the big. … Continue reading Soaring High