They See Me Rollin’

In a week of progress, one event stands out as a symbol of what is to come - Mum's new wheelchair.


You’re Only 21 Once

Yesterday was my sister's 21st birthday. She's had so much to deal with. We wanted to make this birthday special.

The Strange Light From MND

It can be easy to think that being diagnosed with MND means a life of despair. But some good can come from it.


The First Turn of the Spiral

One month on from diagnosis, how are things going?


Dying Matters Week

As it is Dying Matters Week, I summarise some of the difficult conversations we have had to prepare for the inevitable.


Soaring High

Mum’s happiness is the most important thing in the world to us now, and a weekend of laughter is the perfect tonic. Making every day count isn’t about making every day big. Every day is a memory, and the small things matter just as much as – if not more than – the big.  ... Continue Reading →


A Long and Winding Road

I’m on my way home! I’m sat on a packed train full of people eagerly leaving London, anticipating whatever they have planned for the weekend. I’m excited to see my mum and my sister. The past three weeks have been quite painful at times, and it’s hard to sit on the side lines while other... Continue Reading →


The Simplest Pleasures

The simplest pleasures tend to be what people miss the most. The things we take for granted are the things you notice when you can’t do it anymore. The fear of losing them can be the most daunting part of coming to terms with the diagnosis.   In the twenty days since we received the... Continue Reading →


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