[N.B. This post is about caring for someone with a PEG. For a perspective on living with motor neurone disease and a feeding tube, please click here.] Three weeks ago, Mum finally had her PEG fitted. Right from the start of this journey, we knew she needed the PEG. By the time we received her diagnosis, her … Continue reading Fear is Psychological
How three hours of unrivalled joy were simply the culmination of three months of hope and excitement
Association Visitors provide emotional support and practical guidance. Yet 80% of people with MND don't have one.
I'm living in the space between normality and chaos, forging my own path as we fight MND.
For the last day of MND Awareness Month, I want to raise awareness of Emotional Lability.
MND changes your perspective - but achievements can be accomplished and goals can be reached. Like Mum did today.
For MND Global Awareness Day, I share a recent anecdote which demonstrates the importance of talking and raising awareness.
Today I start my second week in my new job. Six days ago, I had to bite the bullet and tell them about Mum.
The unexpected consequences from a conflict between riluzole (MND medication) and antidepressants.
My first fundraising efforts raised £137.52!