Please invite your MP to the Parliamentary Reception, to raise awareness of what they can do to support people with MND and their carers.
Congratulations to Mum and Tim, who married on Saturday 26th August 2017.
The surreal moment you walk into a corner shop and your bride-to-be Mum is smiling at you from the cover of a newspaper...
Four months have passed since the diagnosis. This is the impact it has.
A thank you to the specialist teams who help us refocus on the positive side of life.
When you wait for a bus and four hit you at once.
[N.B. This post is about caring for someone with a PEG. For a perspective on living with motor neurone disease and a feeding tube, please click here.] Three weeks ago, Mum finally had her PEG fitted. Right from the start of this journey, we knew she needed the PEG. By the time we received her diagnosis, her … Continue reading Fear is Psychological
How three hours of unrivalled joy were simply the culmination of three months of hope and excitement
Association Visitors provide emotional support and practical guidance. Yet 80% of people with MND don't have one.
I'm living in the space between normality and chaos, forging my own path as we fight MND.